As part of our aim to help hyperacusis patients obtain better clinical care, Hyperacusis Research president authored a piece in the Oct. 2019 Hearing Journal, whose audience is doctors and audiologists.
Clinicians generally have an insufficient understanding of the most severe and impacting characteristics of hyperacusis; as a result, the needs of the most severe sufferers are misunderstood. A mini-survey we did earlier in the year showed the real impact of this devastating condition, noting that ear pain caused by sound was the single biggest problem for patients. This was followed by loudness sensation, increased tinnitus from sound, aural fullness and a thumping/fluttering sensation.
Around 4 in 10 patients reported different symptoms between ears, primarily because the initial injury involved more noise on one side. Around half reported setbacks weekly.
In some cases, people never recover from these setbacks. This population represents the most challenging and most overlooked group of hyperacusis sufferers. Setback prevention is a key focus for many hyperacusis sufferers and should be a top priority of clinical treatment programs.
The word cloud above was generated from responses to the question: “Describe the actions you take to prevent setbacks.”
Read the full piece here.