Unlike many disabling disorders, Hyperacusis is an invisible disorder. Additionally, the sounds that create pain are also invisible, yet the impact on the Hyperacusis patient is very visible. It often has a significant impact on every part of a person’s life, from their work, their home environment, and virtually every social setting. Depending on the severity of one’s symptoms, hyperacusis patients can develop symptoms of ear pain when exposed to sounds greater than 60 to 75 dB. Hyperacusis patients frequently focus on escaping these pain-inducing sound sources. The cycle of pain typically induced from a single new exposure can last from hours to days or weeks. As patients stabilize they are often confused about how to determine the risk level to various social settings.
Would you like to share your story?
There are a few specific components to patient stories that are especially helpful to researchers: What initiated your Hyperacusis? How long have you had the condition? What types of pain do you experience (sharp, throbbing)? How long does pain last when you get it? What triggers new cycles of pain? Has any treatment approach made a difference in your management of Hyperacusis? Since we have such a strong focus on the research aspects of the problem, we share more stories about people who have yet to recover rather than success stories but we are glad to share both. If you would like your story featured on our site, please contact us.
Read Patient Stories
I would like to summarize my personal experience with low-level laser therapy (LLLT) and some implications for improving our understanding of hyperacusis diagnosis and treatment. Like most people with hyperacusis, my journey has been long and complex.read more
I have always listened to loud music and played loud music, thinking the worst that could go wrong was mild hearing loss when I’m old. At age 14, I started listening to loud music through earbuds. When I started playing bass guitar, it had to be loud or I wouldn’t be...read more
On February 28, 2014, when my ear started ringing out of nowhere, my life was changed forever. That night I first started to notice signs that I had hyperacusis. I’ve thought long and hard about this night and the days that followed trying to piece together how...read more
Hyperacusis Research was excited to participate in a news segment, titled “Hyperacusis: When Hearing Hurts” aired on the News4 Jax TV station. The story features George Rue, a musician whose life was radically altered 9 years ago when he left blues concert with...read more
In a moving documentary, Anthony Ochoa describes the many ways his life has been altered by hyperacusis. Anthony lives in Los Angeles and works as an audio engineer. Watch as Anthony describes how even his own voice can hurt his ears and see how he manages life in...read more
In early 2012, I went target shooting. While I typically wore both ear plugs and ear muffs for this activity, I accidentally fired a shotgun once with only my ear plugs. The sound seemed incredibly loud. The next day there was excruciating pain in my ears, and faint...read more
I have Tullio, a severe hyperacusis condition wherein noise will create pain and vertigo. I was diagnosed with Meniere's in 1989 after many years of being around loud noises from engines, workshop machines, open vehicles, etc., with no ear protection. Other than a...read more
My symptoms of hyperacusis started after acoustic trauma from a carbon monoxide detector that went off in very close range to my ears. I purchased a faulty carbon monoxide detector for my home, which went off twice in one week. In my attempt to turn off the alarm, I...read more
Jesse's hyperacusis was caused by exposure to loud weapons in the military. Now, eight years after the initial onset, Jesse struggles to find ways to do simple things like fishing with his son because even a loud voice can create pain. After following a treatment...read more