Patient Stories

Patient Stories

Like many disabling disorders, hyperacusis is invisible. The sounds that cause pain are also invisible — yet the impact is profound. Hyperacusis affects every aspect of a person’s life — work, home, school, family, friends. Setbacks are common, setting off new cycles of pain that can last indefinitely.

The following are a few guidelines to go by if you can. But it’s most important to tell your story in your own words.

What do you think started your hyperacusis? What is your history of noise / music / headphone exposure? What is the pain like and how long does it last? What triggers new cycles of pain? Has any management approach made a difference for you? How has hyperacusis altered your life? Please also do not make your story too “short” or too “long” – in between is perfect, around 800 to 1,000 words.

If you would like to share your story, please contact us here.

Read Patient Stories

When Hearing Hurts: Hyperacusis in the News

When Hearing Hurts: Hyperacusis in the News

Hyperacusis Research was excited to participate in a news segment, titled “Hyperacusis: When Hearing Hurts” aired on the News4 Jax TV station. The story features George Rue, a musician whose life was radically altered 9 years ago when he left blues concert with...

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Hyperacusis Documentary: A Noisy Life

Hyperacusis Documentary: A Noisy Life

In a moving documentary, Anthony Ochoa describes the many ways his life has been altered by hyperacusis.   Anthony lives in Los Angeles and works as an audio engineer. Watch as Anthony describes how even his own voice can hurt his ears and see how he manages life in...

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Ben Rogers: How I Improved with TRT Therapy

Ben Rogers: How I Improved with TRT Therapy

In early 2012, I went target shooting.  While I typically wore both ear plugs and ear muffs for this activity, I accidentally fired a shotgun once with only my ear plugs. The sound seemed incredibly loud.  The next day there was excruciating pain in my ears, and faint...

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An Automotive Journalist’s Story

An Automotive Journalist’s Story

I have Tullio, a severe hyperacusis condition wherein noise will create pain and vertigo. I was diagnosed with Meniere's in 1989 after many years of being around loud noises from engines, workshop machines, open vehicles, etc., with no ear protection. Other than a...

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A Mother’s Hyperacusis Journey

A Mother’s Hyperacusis Journey

My symptoms of hyperacusis started after acoustic trauma from a carbon monoxide detector that went off in very close range to my ears.  I purchased a faulty carbon monoxide detector for my home, which went off twice in one week. In my attempt to turn off the alarm, I...

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Jesse’s Story

Jesse’s Story

Jesse's hyperacusis was caused by exposure to loud weapons in the military. Now, eight years after the initial onset, Jesse struggles to find ways to do simple things like fishing with his son because even a loud voice can create pain. After following a treatment...

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