Patient Stories

Unlike many disabling disorders, Hyperacusis is an invisible disorder. Additionally, the sounds that create pain are also invisible, yet the impact on the Hyperacusis patient is very visible. It often has a significant impact on every part of a person’s life, from their work, their home environment, and virtually every social setting. Depending on the severity of one’s symptoms, hyperacusis patients can develop symptoms of ear pain when exposed to sounds greater than 60 to 75 dB. Hyperacusis patients frequently focus on escaping these pain-inducing sound sources. The cycle of pain typically induced from a single new exposure can last from hours to days or weeks. As patients stabilize they are often confused about how to determine the risk level to various social settings.


Would you like to share your story?

There are a few specific components to patient stories that are especially helpful to researchers: What initiated your Hyperacusis? How long have you had the condition? What types of pain do you experience (sharp, throbbing)? How long does pain last when you get it? What triggers new cycles of pain? Has any treatment approach made a difference in your management of Hyperacusis? Since we have such a strong focus on the research aspects of the problem, we share more stories about people who have yet to recover rather than success stories but we are glad to share both.  If you would like your story featured on our site, please contact us.

Read Patient Stories

An Automotive Journalist’s Story

I have Tullio, a severe hyperacusis condition wherein noise will create pain and vertigo. I was diagnosed with Meniere's in 1989 after many years of being around loud noises from engines, workshop machines, open vehicles, etc., with no ear protection. Other than a...

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A Mother’s Hyperacusis Journey

My symptoms of hyperacusis started after acoustic trauma from a carbon monoxide detector that went off in very close range to my ears.  I purchased a faulty carbon monoxide detector for my home, which went off twice in one week. In my attempt to turn off the alarm, I...

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Jesse’s Story

Jesse's hyperacusis was caused by exposure to loud weapons in the military. Now, eight years after the initial onset, Jesse struggles to find ways to do simple things like fishing with his son because even a loud voice can create pain. After following a treatment...

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